In Memory

Remembering Mark Schmorrow

Mark came into my life for a reason. He was so kind and humble. The cards of life dealt him a difficult hand, but he never let it break him or make him bitter. He just smiled and pushed through all that adversity. His smile and belly laughter brought joy to anyone who knew him. He was truly a gem in a sea of stones.”


— Laurie Moon-Schmorrow

To love means you’ll grieve.

Laurie Moon-Schmorrow began Grieve Forward in July 2019 to help her channel her grief after losing her late husband Mark to a devastating neurological disorder called Adrenomyeloneuropathy (AMN.)


Mark came into my life for a reason. He was so kind and humble. The cards of life dealt him a difficult hand, but he never let it break him or make him bitter. He just smiled and pushed through all that adversity. His smile and belly laughter brought joy to anyone who knew him. He was truly a gem in a sea of stones.

AMN is a rare disease that affects about 14,000 people in the United States, mostly men. AMN hampers balance and takes a considerable amount of walking ability. Sometimes the disease also develops lesions on the brain, and if that happens, patients experience cognitive and fine motor impacts, speech and swallowing delays, loss of sight and memory problems. Unfortunately, Mark was diagnosed with Cerebral AMN in 2018.

Mark was a former carpenter, avid woodworker and participated annually in half-marathons and BAA 10K races in his racing wheelchair. He loved the New England Patriots, enjoyed cooking and was devoted to keeping as fit and busy as possible. He never let his disease get in the way of his everyday life but life can be unkind and AMN/ALD is relentless. He was often sponsored in his marathon races and donated those funds to ALD/AMN research organizations.

Despite his most valiant efforts to stay well, Mark lost his life-long battle with Adrenomyeloneuropathy on June 18, 2019.

Understanding Cerebral AMN

Mark and my 82-year old grandmother share a laugh.
March 2019
Mark and Alex share a brain check-in.
April 2019

Mark’s Life and Legacy


Mark’s kind nature and commitment to lending a helping hand lives on through his family. To assist other individuals and families impacted by ALD and AMN, consider making a donation in Mark’s memory to a ALD Connect, a Massachusetts-based AMN/ALD non-profit organization that supports ALD and AMN research initiatives. We also invite you to make a donation to the Mark Schmorrow Memorial Scholarship, given annually to a local high-school graduate pursuing a degree in Human Resources or Social Services.

The Schmorrow Strides Memorial Scholarship is given annually to a graduating high school student exploring collegiate studies and career paths in Human Resources or Social Services.

BluStitch Crochet was born from grief. Every piece is 100% handmade and each stitch tells a unique piece of the grief journey. A variety of colors, patterns and sizes are available, and nearly 100% of your purchase helps support others.

ALD/AMN is a relentless and rare progressive neurological disorder. While research is performed every day, there is so much we don’t know. Please help us #Savetheboys by making a donation to ALD Connect.